Quantifying Cognitive and Motor Impairment in Adults Living with Sickle Cell Disease

Quantifying Cognitive and Motor Impairment in Adults Living with Sickle Cell Disease
Recruiting
18-100 years
All
Phase N/A
20 participants needed
1 Location

Brief description of study

We are developing an objective method for assessing motor and cognitive impairment in adults with SCD and using it to determine how we can understand the impact of SCD on aging especially with respect to cognitive impairment and motor performance in activities of daily living.

Detailed description of study

The study will take place at the Rehabilitation Robotics Lab located at Penn Medicine Rittenhouse at 1800 Lombard Street, Philadelphia, PA 19146.

We are looking for two types of individuals:
  1. Participants for our control group: Healthy adults without SCD and without brain impairments who are above the age of 18.
  2. Participants for our Test group: Adults with SCD that are not in/nor have had a vaso-occlusive pain crisis in the past 7 days and are above the age of 18.
Your participation in this study will last for approximately 4 hours (one 4-hour session or two 2- hour sessions based on your preference).

You complete cognitive & motor assessments and complete two tasks with the haptic robot while data is collected. After interacting with the robot, subjects will be asked to complete surveys on their experience.

You will be compensated a total of $50 USD for completion of the study. $25 for the completion of the cognitive and motor assessments and $25 for the completion of the robot assessment. 

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Sickle Cell Disease,SCD
  • Age: Between 18 Years - 100 Years
  • Gender: All

Inclusion Criteria:
  • Must be over the age of 18
  • Either do or do not have Sickle Cell Disease 
  • Any gender, education level, ethnicities welcomed
  • Must be able to complete tasks
Exclusion Criteria:
    • Cannot have had a diagnosed stroke 
    • Cannot currently be in a vaso-occlussive pain crisis 
    • Cannot have been in a pain crisis in the past 7 days

    Updated on 22 Aug 2024. Study ID: 854019

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    • You can expect the study team to contact you via email or phone in the next few days.
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